Ellie had her 1st CDC visit, which is the developmental clinic at Childrens we go to. 5hrs and 11 different people we saw! What a long day. I expected for them to say the brain MRI maybe or maybe not showed some damage but that everything was really status quo and continue as we were and return for our followup to check progress.
Reality of what I heard was Ellie's spinal cord could possibly be tethered (tangled) and be causing her lower extremity issues! They scheduled us for yet another MRI, #3 total, this next week to check the spine and cord, if it does show it is tangled then we will proceed with surgery to free it. The neurologist tells us we should hope that this is the cause because he can fix it. If it is not there is nothing he can do for her but just help us through the process of things to maintain the best quality of life for her that we can!
Sometimes people say I don't know how you do it all the appts, therapy ect.... well someone has too! But I was blind cited by this appt! Excuse me Dr that I have trouble being excited my baby might need spinal surgery! Mommy blinders, like horse blinders, keep us focused forward and where we are going in the now and here and deter us from the "what ifs" surrounding us, but it also hides the bus that is about to run you over!
